Owen’s Extradural Empyemas

Yesterday was a good day – Owen did not need to visit a hospital, for the first time in 63 days! The last few months have been pretty rough for all of us, especially Owen. He was in hospital for almost three weeks, then has been on “home leave” for 23 hours a day for the last six weeks, but needed to return to the hospital daily for intravenous antibiotics. He has not actually been discharged yet, but as he has been told he can stop the antibiotics, we are classing this as a win! This blog post may seem a bit disjointed, as it has been updated over the space of a few months, often at times when I was quite sleep-deprived. It was mainly written so I can look back on what happened, especially if Owen has questions in the future.

We think it all started at the end of September, Owen was falling over a lot – even more than usual. Enough that I was concerned enough to think I needed to call the doctor. However, Henry became ill, with whichever respiratory illness was going around school at the time, and we thought nothing more of it. Whilst Henry was off school, Owen had his flu vaccine and then became quite poorly. The boys were meant to spend the weekend with my parents, as Jen and I had a night out planned, to see Jo Whiley DJing in Coventry, so my mum came to stay and look after the boys on the Friday night, as Owen was too poorly to travel. His condition got worse over the weekend, he had a fever, was sick a few times and at points he was almost delirious. We still thought it was a bad cold or a reaction to the flu vaccine. By the Monday, he was feeling a bit better in himself but was complaining of sore hips. At this point, we visited the doctor, who suspected “Irritable Hip Syndrome”, but sent us to A&E to rule out anything more sinister. I dropped Jen and Owen off at the hospital and returned to collect Henry from school – then had to take him back to school for a meeting, which children were not really meant to attend. He was so good and sat quietly whilst the teachers explained to the reception parents that we needed to read lots with our children. By the time we got home from the meeting, Jen and Owen had finished at the hospital, so we collected them and all went to McDonald’s. The verdict from the hospital was that Owen had “Irritable Hip Syndrome” and a Urinary Tract Infection, for which he was prescribed antibiotics.

Owen’s health continued to improve, and he was back at school on Thursday, albeit with strict instructions to take things easy and to go to the office for his antibiotics at lunchtime. On Friday we had a nice evening watching Redbull Rampage and eating pizza with our friends Partho and Marilena, and their two sausage dogs. I had even managed to make a big batch of cookie dough for dessert. The rest of the weekend was quiet, we went for a walk in Millison’s Wood and I joined the Godiva Trail Riders for a ride around my usual loop. On Sunday Owen had the last of his antibiotics. By Monday he was back to normal, his hip was feeling better, so he rode his BMX to and from school. He even went swimming in the evening. Then, unbeknownst to me he woke up in the night feeling poorly. Jen was at the gym first thing in the morning and when he started playing up at breakfast, saying that he was too poorly to go to school I thought he was trying to get another day off. I told him that if was ill, he would have to go back to bed and stay there. Which he did, for the whole day, because he was actually quite ill. Wednesday was slightly better, he managed to make it down the stairs, to sleep on the sofa all day. By Thursday he still had headaches, although they were improving slightly. At this point, we called the doctor again and were directed straight to A&E.

Jen dropped Owen and I off at A&E and we were seen relatively quickly, although there was a bit of a wait to see the senior doctor. When we eventually saw her, Owen had decided that he did not have a headache anymore and that it only happened “at home, when my brother is annoying me” – I thought we were about to get sent home and had wasted a day, but thankfully, as it was Owen’s second visit in two weeks, she took it seriously and booked Owen in for a CT scan and some blood tests. By this time it was the evening, and Jen took over waiting with Owen. The CT scan showed something on Owen’s brain, which normally would not require further investigation, but given the headaches, an MRI scan was requested, and Owen was admitted to the hospital. Little did we know how long he would be staying in hospital!

The next day, Owen had the MRI and after it had been analysed, it was decided that Owen would be transferred to Birmingham Children’s Hospital for an operation the following day. There was some uncertainty if the infection/pus had spread from Owen’s sinuses into his skull, but either way, it was putting pressure on his brain and it needed to be cleaned out. Owen was also started on a course of intravenous antibiotics. Another CT scan was ordered, this time focussing on the sinuses. Henry and I were able to visit in the evening and deliver a McDonald’s before Owen had to stop eating in preparation for the operation. Owen and Jen got taken to Birmingham by ambulance – Owen’s first ride in an ambulance. However, it was not deemed to be a serious enough case for the lights and sirens to be needed. He was initially admitted to the “short-term surgery” ward, which sounded positive, but was then moved to the renal ward, as they had space, and there was no ENT ward. Whilst all of this was happening, Henry and I had a quiet morning at home, waiting for my mother-in-law to arrive to look after Henry and take him to a party, so that I could join Jen and Owen in Birmingham. Keeping things as normal as possible for Henry was going to be a big part of Owen being in the hospital.

By the time I got to Birmingham, Owen was ready to go into theatre for a FESS (Functional Endoscopic Sinus Surgery) procedure. He was able to walk himself to the operating theatre – bizarrely we had to go through an event, unveiling a new plaque, to get to the theatre, squeezing past photographers and dignitaries. This an article about who the plaque was commemorating. Jen and I were able to go with him to the anaesthetic room, which allowed me to meet the surgeons (Jen had already met them) and for us to be able to reassure Owen, who was getting quite nervous at this point. Owen went to sleep fairly quickly and Jen and I were left twiddling our thumbs, whilst the surgeons got to work. We went for a little walk around the block, but did not want to be too far from the ward in case Owen came back. In the end, the surgery was a bit longer than expected, as they fitted a neck line, to make administering the antibiotics easier. It was the evening by the time Owen came back from surgery – 24 hours since he had last eaten. And he was hangry! His nose also hurt, unsurprising as there had been a camera poked up it! As we were trying to sort him out with some food, the neurosurgeon came to visit us and gave us an update on Owen’s condition. I was impressed that he had gone into theatre for Owen’s procedure, even though it was being led by the ENT team, so that he could get a better handle on what the infection was. He also took the time to explain Owen’s condition – a bad sinus infection, which was putting pressure on his brain. Inside the skull, there is a membrane between the sinus cavities and the brain, but the surgeons were unable to tell from the scans if the infection had crossed this membrane yet. It seemed like we were lucky to have caught it early, as usually the first people know about it is when the patient collapses. In Owen’s case, they were able to treat it from the sinus side first, and monitor the brain side, rather than needing two separate operations. It also became clear that this would not be a quick road to recovery, with a long course of antibiotics required. The neurosurgeon said that he hoped to have Owen “home for Christmas” – bear in mind this was mid-October.

The neurosurgeon had also arranged for Owen to be moved to the neurosurgery ward so that they could keep a closer eye on him. On the ward, it became clear that Owen was one of the least poorly children there, which certainly put our situation into perspective. As difficult as it was being on the ward, the care he received was second to none. We quickly got into a routine on the ward, with Jen and I alternating staying with Owen and looking after Henry at home. We had to get into a routine because fourteen medical things had to happen each day, most of which the nurses left us to do:

  • 4x sinus flushes – squirting a saline solution up his nose to rinse out anything, as he could not blow his nose for the first few weeks
  • 3x thirty-minute intravenous antibiotic infusion
  • 2x doses of anti-seizure medication
  • 2x doses of nose drops
  • Another thirty-minute intravenous antibiotic infusion
  • A nose spray
  • A wash with some special antibacterial soap

In addition to all that the nurses had check Owen’s blood pressure, oxygen saturation, temperature and neurological responses every four hours. And of course, he needed to eat and drink – which all needed to be logged by the nurses, along with any trips to the toilet.

I was surprised to meet the physio team, but I think it must have been a standard procedure for patients on the neurosurgery ward. They were happy that Owen was fine walking and using stairs, so discharged him from their care straight away. I raised that Owen is usually pretty active and my biggest concern was that he could be bed-ridden for months and that lack of movement may lead to issues, so the physio told us about the play centre at the other end of the hospital, which really changed Owen’s stay for the better! We had to get a nurse to do some paperwork each day that we wanted visit but once that was done, Owen was free to leave the ward and visit the play centre, albeit only the indoor facilities, as his neck line precluded him from going outside. Being able to get off the ward was great, Owen could stretch his legs walking down the long corridors and the play centre was the sort of things little boys dream of – a big room full of toys, musical instruments, games, video games and staff there to make sure you are having a good time! On our first visit, after initially trying out the drum machine, Owen gravitated towards the Lego, building a Lego hospital, which endeared him to the staff straight away, and as they could see he loves Lego he was given a Lego Minecraft set, supplied by the Fairy Bricks charity. We finished up our visit with half an hour on the PS4. The only downside to the play centre was that we could only visit in the gaps between our various commitments on the ward. So usually we could only fit in a few short visits a day, but Owen made the most of these visits! There was also a smaller playroom on the ward, which Owen could use when we did not have enough time to walk across the hospital.

One project that I have thought might be worth doing with Owen “one day” was to make a stop-motion animation, and a long hospital stay seemed to be the ideal time for such a project! I installed the Stop Motion Studio app on Owen’s iPad and we started experimenting with Lego characters on the table at Owen’s bed, quickly learning the basics and that we ideally needed something to support the iPad. When Owen had built the Minecraft “Abandoned Village” Lego set from Fairy Bricks, we realised that it would be perfect for a stop motion animation, as there were multiple characters and buildings. We found a quiet corner in the ward playroom, built an iPad support out of Megablocks and put our new-found skills into practice. Owen was rightly proud of the end result, showing all his visitors and any doctor or nurse who came to his bedside. This is the film we made:

Whilst in the hospital Owen also got a lot of Minecraft practice, I had planned to set up a Minecraft server on AWS so that Owen could play with his friends, but I could not get into the AWS console on the hospital WiFi. I got as far as setting up an EC2 instance using CDK, via the hotspot from my phone, but realised that it would be easier to pay for Minecraft Realms and get Owen playing as soon as possible. The only issue with Minecraft Realms was that Owen could also not connect to it over the hospital WiFi, so he had to tether to my phone to connect to that too. We invited one of Owen’s friends to the realm, and when we next logged in, his friend had been busy – he had built Owen a house, and left him with lots of supplies and some nice messages on the wall. It was so sweet to see how they interacted through the game. Owen’s friend’s mum also got involved, building herself a nice house and garden. The only downside is that Owen can only have one world loaded at a time, so I think it will be worth carrying on my project to get a server set up.

When we were driving to the hospital in Birmingham every day I noticed a billboard on the side of the hospital, highlighting their campaign to fund an iMRI scanner for the neurosurgery team. This would allow the neurosurgeons to be able to perform MRI scans mid-operation and ensure that they have removed all of a tumour, for example. Whilst Owen did not need brain surgery, it was the neurosurgery team leading his care, so this appeal is close to our hearts. The Birmingham Children’s Hospital Charity also do great work all over the hospital, including things like the play centre and running a Santa’s Grotto for patients.

After about a week on the neurosurgical ward, Owen was moved next door, to the gastrointestinal ward, as he was the least ill child on the neurosurgical ward and they had too many patients. Whilst it was good that he was considered the “least ill”, it was concerning that he was no longer on the neurosurgery ward. Other positives were that there was a bit more room around the beds, so it was easier day to day for us. And for Owen, the ward had a Nintendo Switch that he could borrow. Before Owen could be transferred back to the hospital in Coventry the last thing that needed to happen at Birmingham Children’s Hospital, was for Owen’s neck line to be replaced with a more durable “Hickman Line”, which goes into Owen’s heart, which is what you can see in the photo at the top of this post. This type of line means Owen can go outside and lasts for up to a year – although Owen should only need it for a few months at most! The downside is that it needs to be inserted and removed under general anaesthetic, meaning that Owen had to have a second, short operation, and still has another one to come in the new year to remove it.

Once Owen had recovered from his operation he could move back to Coventry, as a bed and transport became available. It was past Owen’s bedtime, on the day after his operation, by the time we were able to be transferred. As Owen was still awake we decided to get the taxi to Coventry, as it felt like a big step forward for Owen’s recovery and we did not want to risk waiting for more transport to be arranged the following day. When we arrived back at UHCW we were shown to our side room – after more than a week on wards it was nice to be in a quieter room with our own bathroom! It was also a nice touch that Owen had the same nurse looking after him who had looked after him before his transfer to Birmingham. And that she remembered him. We both had a good sleep in the room, but it was only in the morning that we learned Owen was in the side room to make sure he was not bringing any infections over from Birmingham. So the trade-off for our good sleep was that Owen was not allowed to leave the room. He did manage to borrow another Nintendo Switch from the ward play worker, so he did not get too bored between the various medicines and nose flushes. Being nearer to home also meant more visitors, so even though Owen was confined to the room, he as kept occupied.

Jen and I had a trip to Rome planned around this time, which we had to cancel. Fortunately, Henry was keen to stick to his part of the original plan – a four-night sleepover at my mum and dad’s house. After two weeks of alternating looking after each of the boys, it was nice to be able to have some solo time at home, to get jobs done and in my case get back out on my bike – it definitely felt like hard work after a few weeks off the bike, especially with much muddier trails.

On one of my bike rides I had a message from Jen, that as Owen was no longer in isolation in his side room, he could leave the ward and come home between his doses of antibiotics! I raced home, but Jen and Owen beat me, it was nice to get back to a full house though, even if Henry was not there. We had a quiet few hours at home, before I returned to the hospital with Owen for another round of medicines etc. The next morning we were able to come home again, and word had got out, so a few of Owen’s schoolmates called round to see him. Seeing his friends really cheered Owen up, as did his favourite dinner – Jen makes a great toad in the hole, but it must have tasted even better for Owen after a few weeks of hospital food! We also managed to squeeze in a quick Lego build, and a photo (the one at the top of this post) for the Lego #BuildToGive campaign – where Lego donate a set for the Fairy Bricks charity to distribute to poorly children in hospitals each time anyone shares a picture of a Lego heart on social media. Henry also got involved from Grandma’s house.

Jen took Owen back to the hospital – with an MRI planned first thing the next morning, the results of which would decide if the three times a day antibiotic could be stopped. Unfortunately, as is the way with these things, we were unable to get an answer from the doctors in time for Owen to come home, but the headline was that the size of the abscess had reduced. We were also told that we could stop the nose flushes. I took over from Jen, and the disappointment for Owen of having to stay in hospital one more night was somewhat reduced by him beating me at UNO. After he had fallen asleep the nurse gave me the good news that he was only due one more dose of the three-times-a-day antibiotic, which meant we could go home the following morning. Although, we would still need to come back each day for the daily antibiotic. Naturally, it still took some time for us to get all the paperwork completed for Owen to come home, so Jen came to join us after she had dropped Henry off at school. Eventually, at lunchtime, we were told that we could go home, and collect the paperwork when we came back in for the evening for his daily antibiotics. It was nice to be able to potter around together and to do a bit of Lego at home with Owen. And Henry’s face was a picture when he saw the three of us picking him up from school – he had really missed Owen. Henry had even promised that he was “not going to fight with Owen ever again”. However, that soon got downgraded to “I am not going to fight with Owen whilst he has his line in”.

On Owen’s first night at home, we had a bit of a scare, as he woke up screaming with stomach pains. Even though he was an inpatient, the ward told us to take him to A&E, Jen took him over, and it sounded like chaos, the ward where Owen had been was full, which meant A&E had nowhere to send patients, so they were also full. In the end Owen said he was feeling better, so Jen brought him back home, and we had a doctor check him over the next evening – and they said that they could not find anything wrong. He had a couple more episodes of this, but without the trips to A&E.

Although Owen still needed to go to the hospital for his daily antibiotics, having him at home, sleeping in his own bed (and us sleeping in our own bed!) and going to school was a big step forward. It did not take long for Owen to get back to his usual self, it was funny hearing one of his school friends saying it was good to have loud Owen back again. Even though things were getting back to normal, we still had to visit the hospital every evening for Owen’s antibiotics. It did not seem that the ward was set up to deal with longer-term patients on home leave, it was just a case of turning up every evening and seeing what happened, usually, we were put in a small side room, and sometimes Owen would be hooked up to the pump for his antibiotics straight away, other times we would have to wait for an hour or two, depending on how busy the ward was. Eventually, Owen was able to get booked into the day unit on the ward, four days a week, where things tended to run a bit smoother, Owen was usually their last patient of the day, so they were waiting for him. One thing that particularly annoyed us during this period was that we were paying at least £5 per day to park at the hospital, we applied to get a free parking pass, but the requirements were that you had to have at least three appointments a month, for three months. Daily appointments for two months did not cut it. It is madness that someone having nine appointments over three months gets free parking, but someone having sixty appointments over two months does not qualify!

In addition to the daily trips to Coventry hospital, there were also regular trips to Birmingham Children’s Hospital, for MRI scans, reviews with the consultants (both neurosurgery and ENT) and eventually an ultrasound scan to look for gallstones – a side effect of the antibiotics that Owen was on. Nobody had mentioned this at all, even when Owen was being checked out for the stomach pains he had been experiencing. It was only because a doctor mentioned it in passing. The scan showed that there were not any gallstones, but it did highlight the missing link in communication between the hospitals. Another example of this was when we were told that Owen would be stopping his antibiotics mid-November, which had been a date we were all focussing on, only then to be told that there were at least another four weeks to go, but as usual we just adapted to the new routine and carried on with it. It all seemed to be getting to Owen, as he had a few issues at school, he needed first aid at school most days, and it almost got to the point where he was going to be kept inside at break times, we are yet to get to the bottom of why, but anxiety about his line probably played a part of it.

Owen has not yet been officially discharged, from hospital, but after a review of his most recent MRI the neurosurgeons were sufficiently pleased with his progress that they said the antibiotics could be stopped, and that they would start the process to get his Hickman Line removed, which should be a day procedure. Until that happens, the dressing for the line still needs to be changed weekly, at Coventry hospital, but hopefully, that will be a quick job.

After seeing the neurosurgery team in Birmingham, we dropped OWen back at school, relieved that we would have a few days away from hospitals. Then we got a phone call from school… This time it was about Henry – “You need to take him to A&E?” He had bumped his face on a bench and split his nostril, so nothing major, but after thinking we would be avoiding the hospital for a few days, it was not ideal. Fortunately, it was a quiet day at A&E and Henry was seen quickly. He seemed fine in himself and was very well behaved waiting, he could probably sense how unimpressed I was to be back at the hospital. He mentioned to the nurse that he had bumped his head “but it is OK now”, so the nurse had to check him for signs of concussion. She also needed to get second, third and fourth opinions on Henry’s nose, so we were in there for a few hours. Eventually, they settled on a steri-strip to hold his nose together and a follow-up appointment with the ENT team when the swelling has subsided – another hospital trip. When Henry and I got back, we all went to KFC for a “traditional Japanese Christmas dinner” to celebrate. The next day, yesterday, we successfully managed to avoid hospitals!

This post ended up being longer than I planned, I guess that’s what happens when you have too much time on your hands your hands in hospital. The TLDR is that Owen had headaches for a few weeks, we took him to A&E, and they found an abscess in his skull, he was admitted to hospital in Coventry, and transferred to Birmingham Children’s Hospital for an operation to clear out his sinuses, then had a few months worth of intravenous antibiotics. He is making a good recovery and is now back home. Fairy Bricks gave him some Lego – donate to them! And the Neurosurgical team at Birmingham Children’s Hospital looked after Owen really well – donate to their iMRI appeal too!

My Fortieth Birthday

I only usually do birthday posts for the boys, but it was a big one for me today! The last few months have been pretty stressful, for various reasons, and plans for the day got changed, not to mention a birthday weekend away being cancelled. But in the end, it was just nice to have a day off work and spend time with family and friends.

After presents and cards with Jen and the boys, we got soaked walking to school. And then got home to a broken washing machine – it had sounded poorly for a while, so at least we already have a new one on order to be delivered later in the week! With the bad luck out of the way, the fun stuff could start – we took the MR2 to meet Partho for breakfast at The Barn At Berryfields. Given the poor weather, I had not been expecting to drive the MR2, but I figured that all of the rain overnight would have washed the salt off the road. It was good to get out with Jen in the MR2, even if it was just a short trip, with the roof up. Breakfast was tasty (as always at Berryfields) and not too big. It was great to catch up with Partho – he had made a card for me with photos spanning our 25 years of friendship, which was a really nice touch.

After breakfast, I packed the van and went to Leamington Spa to ride the new mountain bike trails on Newbold Comyn. It was cold and rainy, and my kit was still wet from yesterday’s even wetter ride, but I was not going to miss out on one of the few things that was able to go to plan. Even if my shopping trip to Leamington was scuppered by a too-good-to-miss Cyber Monday deal last week, and my Clockwork Evo, which I had hoped to ride, still being in bits in the garage. Jen had also hoped to do some shopping in Leamington, but her trip was replaced with a trip to her parent’s house to sort out the half-washed load of washing. I had a short but fun ride on the excellent trails – which were holding up surprisingly well given the recent weather. I can confirm that being forty is no barrier to jumping your bike and having fun in the mud!

By the time I got home and cleaned up, it was time to pick up the boys from school and meet my parents at Hickory’s restaurant for some BBQ food with my mum and dad. Dad convinced me to share the BBQ platter with him (I did not take much convincing) – it has been quite a few years since I last had the platter, so it was good to try the latest version, as it has all of the main things from the menu, which has been subtly updated in the years we have been going there. I will certainly be ordering some of the newer dishes on future visits. We came back home – to our newly refurbished living room(!) for birthday cake. Jen had asked me what I wanted, and I said “Devil’s Food Cake”, but it turned out that my mum has a unique take on Devil’s Food Cake, so Jen asked her to make it instead. It was a lovely cake, Henry also seemed to enjoy it, asking for a second helping. I am very lucky that both my wife and my mum make great cakes!

With the boys in bed, I ended the day with a wee dram of single malt, building the Lego Porsche that Jen bought me and thinking that as birthdays go, this has been a pretty good one!

Mushrooms of Coventry

The other week most of the photographs I took were of mushrooms, both in my local woods, and on bike rides around the city. The first ones, were a mountain of mushrooms in the “fairy village”, I had noticed them on a previous bike ride and thought it would be worth returning with the camera.

Whist photographing the mushroom mountain I noticed a tiny baby mushroom growing out of a log – I needed to use the macro extension tubes to get close enough. It is hard to tell the scale from the photo, but the lush green plants surrounding the mushroom is actually moss. The mushroom was less than one centimetre high.

After I got back from my photo walk in the woods, I went out for a bike ride, taking my X100V along in my rucksack. I am unsure if it is the weather, or if I am more attuned to seeing mushrooms, but they seem to be everywhere in the woods at the moment. The X100V is not the best camera for this type of photography, but it is the best one that easily fits into my bag.

Later on in the week, I went back to the woods with Owen and Henry, Owen was excited to see the mushroom mountain by the fairy village. It was even bigger than when I photographed it. Henry was just happy to be messing about in the woods, but I managed to get him to pose for about three seconds. Unfortunately I was too slow to capture my friends from Godiva Trailriders who rode past us on their Saturday morning ride.

Where we have been 2023

The boy’s school has got a geography display, showing where students have travelled to this year. They asked for parents to share some photos for the display, and I could not resist sending a few in. As I had collated a group of images I thought I would also share them here.

Cheddar Gorge Panorama

Cheddar Gorge: from our Somerset weekend. The boys, particularly Henry, did so well walking around the top of the gorge. It was a long walk for little legs. I was not sure that the panorama would work well, so I snuck in a photo of Owen too.

Lake Windermere: from the first stop on our summer road trip. I had been tempted to send in one of the photos that Owen took, but did not have them to hand.

Hadrian’s Wall: also from our summer road trip, but I thought it would be relevant as Romans are one of the history topics at school.

The England/Scotland border: I just wanted to see if a photo of the van would make it on to the display.

The Tweed Valley: I do not think anyone else at school would have appreciated the Tweed Valley, so I added a shot of Owen riding at Glentress. I skipped out Edinburgh from the second part of our road trip, as it looked like someone else had already submitted a photo for that.

Saltburn-by-the-Sea: This photo of the pier at Saltburn, from the last stop on our road trip, is one of my favourite photos that I have taken this year. I also felt like I should add in a photo of Henry, as I had included a few of Owen.

The boys have not seen the display yet, but the geography teacher has thanked Owen for the photos. I do not think we have got any more trips planned with the boys in 2023, but when we are on our travels next year, I’ll be sure to get some more location photos just in case.

Super Power Words

Now that Henry has started school properly, he is learning to read, and each week he gets sent home with three “super power words” to learn. Back in 2020, when Owen was in reception, he had the same words to learn, except we were teaching him at home. At the time, I thought it would be cool to have an iPad app for Owen to practice on, but I did not have the skills to knock one up quickly, nor the time to learn. Fast forward three years, to when Henry is learning to read, and I am working as a software developer full time, and it is the sort of thing I can knock up in an evening after the boys have gone to bed. So I did – as soon as Henry came home with his first set of super power words!

I used Create React App to bootstrap a basic application, as Next.js would be overkill for something so simple. Then it was just a case of adding a function to randomly display the words, and a click handler to call it. Initially, I hardcoded the words, to get to a “minimum viable product”, where testing showed I needed to add some more logic to prevent the same word being shown twice in a row. The plan was always to share it on my GitHub, so I changed it to read a list of comma-separated words from environment variables, and whilst there added the option to change the heading to make the app usable for other people.

The “user acceptance testing” (showing it to Henry) identified that the words needed to be all in lowercase, except “I”, and that the “a” character was not displayed as taught at school, so I figured that teaching a four-year-old to read was one of the few valid use cases for the “Comic Sans MS” font and switched to that.

To get the app onto Henry’s iPad, as he does not like laptops, I used AWS Amplify, which combines a basic CICD pipeline and serverless hosting, for a cheap hosting solution for simple web apps. I was also able to hook it up to Henry’s domain name. Builds are triggered by pushing app changes to the main branch of the GitHub repository for the project. When Henry gets a new set of words it is just a case of updating the environment variables in the Amplify web console and re-running the latest build.

If you want to try for yourself, you can check out (or fork!) the repository, create a .env file, set your environment variables and run “npm start”. Or simply have a look at www.henrycraik.co.uk.

A Weekend with the Fuji X-H2S

When I switched camera systems to Fuji back in 2018 I thought that my sports photography days were in the past. However, I really enjoyed photographing the British Downhill Series at Llangollen last year, and a few other mountain bike races since. The only problem was that I felt I was being held back by the autofocus on my Fuji X-T2. When Fuji launched the X-H2S camera with a stacked 26 Megapixel sensor and improved autofocus my interest was piqued. Especially as they announced it with a mountain bike video! I did have some reservations, as the camera was aimed at hybrid (stills and video) shooters and hoped that Fuji would have carried over the new technology to the next X-T camera aimed at photographers. Instead, they went for a higher resolution, 40 Megapixel, sensor. My ideal camera would have been the sensor from the X-H2S, in the body of the X-T5, but sadly Fuji have not made that (yet!), so I have to choose between the high resolution stills model, or the fast hybrid camera. Luckily Fuji UK free 48 hour test drives, so I would be able to try both options. I decided to test the X-H2S first and booked the loan in to coincide with the first round of the Racers Guild Winter Series Downhill race at Cannock Chase.

My first reaction on unpacking the camera was that it is a chonky beast – I had not appreciated how much bigger it would be than my X-T2. After failing to attach the supplied strap, I threw on some Peak Design tethers, so I could use my Peak Design Slide strap. The strap lugs on the X-H2S are much better than on the X-T bodies which require metal rings between the camera and strap (or anchor in my case), it is only a minor point, but one that made me warm to the X-H2S. On my lunch break, I quickly dialled in some settings, and went for a walk in my local woods, to try and test the autofocus on some squirrels. I did not have much time, nor were the squirrels cooperating, but I did get a glimpse of what the subject detect autofocus was like. However the first real test was in the evening when Owen was at his karate dojo – Henry and I went to a nearby park. Henry was typically reluctant for photos, but I managed to grab a few shots with my 35mm f1.4 prime lens fitted to the X-H2S. This lens is known to be slow to focus, so I could not come to any conclsions about that, but chasing Henry around the play ground was a good test for the handling of the camera – such as quickly switching to a slow shutter speed for the photo on the roundabout. Upon getting the files in to Lightroom I really liked the Nostalgic Negative film simulation, which is not available on my previous generation Fuji cameras.

The race was on Sunday, but we also had a fun plan for the Saturday – Owen and I were going on a boys mountain bike trip with my friend Partho. The original plan had been a trip to one of the “top ten XC trails” with Partho, which was one of my goals for the year. However, Owen needed to come with us, so it changed to a boys trip to the Forest of Dean to keep the driving time down. Then we realised that there was a big event on there, and plan C formed – a return visit to Sherwood Pines for Owen to try and meet his goal of a 20km bike ride.

We rode the full length of the red-graded “Outlaw” trail, which was not quite long enough for Owen to meet his goal, so we added on another short loop, starting on the blue-graded “Maid Marian” trail, then rejoining the last few sections on the “Outlaw” trail. Before heading out for the second loop, I swapped my hydration pack for my camera bag, to get some shots of Owen and Partho on a new section of the blue trail. I chose a berm, with good lighting, set the X-H2S to 15 frames per second high speed shutter, activated the “bicycle” AI focus mode and called for Owen, and then Partho to drop in. I felt like I got good shots of them both railing the berm, then quickly packed up my bag and chased them down the trail. It felt great to be riding at my pace on a fun section of trail, even if I had a heavy camera bag on my back. As I caught up with the others Partho even managed to get a photo of me airborne over a jump.

We completed the loop, and celebrated Owen achieving his goal with some lovely brownies that Partho had brought with him. The excitement only lasted until we were back at home and I had downloaded the images to Lightroom: none of the eleven frames of Owen were sharp, and only one out of seven of Partho were sharp – the one above. The shutter speed, 1/500th of a second, should have been fast enough, so it could only have been missed focus. Disappointing when I had such high expectations for the autofocus on the X-H2S.

Not feeling fully convinced with the autofocus on the X-H2S, I decided to also take my X-T2 with me to Cannock Chase, just in case it was needed (thankfully, it wasn’t). After walking down the track I found a good corner to shoot from, but again, the AI autofocus was struggling, so I started going back up the track to try a few more angles. For the last few runs of practice I was shooting head on, as the riders came down a long chute – and the AI autofocus was working well. It seemed that it needed to see the rider for a bit before tracking then – maybe this is something that I could have tweaked in the advanced settings, but would need more time with the camera to be sure. Another option would have been to disable the subject detection autofocus and to just use a single focus point, like I would have done on the X-T2, but in the heat of the moment I did not consider that option.

Now knowing how to play to the camera’s strengths, I stayed at the bottom of the chute for the first race runs. The photos were nicely in focus, and I had been able to get a shot of most of the riders. However, they were not what I was hoping for, they were lacking in dynamism, execept for the riders that were jumping.

For the second race, I went back to the first corner I had scoped out. I had come up with a plan to work around the autofocus limitations I had experienced earlier – I would switch the camera to manual focus (I missed the SCM focus switch from the more traditional Fujis) and pre-focus on the exit of the corner. The 15 frames per second burst mode would allow me to pick the sharpest frame. As well as being better for photography, there was more of a party atmosphere at this corner, as it was towards the end of the track, next to the biggest drop. Riders were finishing their runs and gathering around this area to watch the faster racers coming down on their runs. Once again I was reminded just how fun it is to watch mountain bike racing in person, even at a grassroots level, the fact that I was able to photograph it was the icing on the cake!

When I got home, I had some issues importing the files to Lightroom, I do not know if this was a hardware or software issue on my MacBook Pro, or anything to do with the Cfexpress Type B card used in the X-H2s. I tired importing both from the card reader Fuji had sent with the camera, and by connecting the camera directly by USB, but both had issues. It is something that I would need to investigate more in the future, but I would not rule out the camera based on this. As I understand it, the Cfexpress Type B card is part of the reason that then camera is so fast in use, but I thought that it was worth noting the import issues. Otherwise, I was happy with the image quality, it is the quality I would expect from a Fuji X camera.

My preconceptions of the X-H2S were that I would love the autofocus, but hate the handling, I was wrong on both counts. I was underwhelmed by the autofocus, although I expect that with more time, tweaking of the settings and learning how to work with the camera I would be happier with it. Experienced camera reviewers believe that the autofocus on this model is pretty much on a par with Canon and Sony’s high end cameras, so will have to trust them on that. After initially thinking that the camera was huge, I grew to appreciate the size and handling – I even managed to forget to take a camera strap with me to the bike race, so held the camera all day – I am not sure that would have been as doable with my X-T2, which is a much smaller body. I was shooting in shutter priority mode all weekend, but adapted to the different “PASM” controls easily – I thought this would be a deal breaker for me, but I think I could manage.

Although I am yet to try the X-T5, the X-H2S has overtaken it and is now top of my wish list for my next camera. However the reason I use wish list is that there is a big price jump from the X-T5, especially when you consider the need for a Cfexpress Type B card and that there is no “kit” package with the 16-80f4 lens available for the X-H2S. However, my main takeaway from the weekend is that I probably need to prioritise a new telephoto lens, rather than a new camera body. When I bought my Fuji 55-200mm lens I liked the compact size and versatility, but after a few years I am coming into its limitations – the autofocus could be better and I either use it at the wider end or maxed out at 200mm for wildlife, where it is not really long enough. So an upgrade to the Fuji 50-140mm f2.8 lens is in order, and my aspirations for wildlife photography will have to be put on hold. 50-140mm is the Fuji equivalent of the 70-200mm lens that I used on Canon for many years and is the go to focal length for sports photography. So even though my expectations for the weekend went out of the window, I still feel like I have come out of it with some clarity on what camera kit I will purchase next.

Summer 2023 Road Trip: Part 3 – Saltburn-by-the-Sea

This is the third post in the series about our summer 2023 road trip, where we stayed in the Lake District, the Tweed Valley and Saltburn-by-the-Sea (this post).

After picking up cakes from the bakery in Peebles, we started the drive south, back to England. After enjoying our visit to Birdoswald Roman Fort on Hadrian’s Wall on the way to Peebles, we decided to stop at Corbridge Roman Town just across the English border. We had not checked that there would be a cafe – so it was a good job that we had picked up some cakes before we left! We ate our “lunch” sat amongst the ruins of the Roman town. The boys loved clambering over the ruins as they played hide and seek. I much prefer this sort of historic attraction to one that is all roped off. What struck me about the town was how well-engineered things were, with buildings with raised platforms for storing grain, and water systems. And of course that these were still visible two thousand years later! From Corbridge we carried on south, skirting around Newcastle and catching a glimpse of the Angel of the North, and as we got nearer to Saltburn, eventually arriving on roads familiar from our trip to Staithes last year.

We arrived in Saltburn too early to check in to our Airbnb, but we were able to park on the street outside, and went straight down to the beach – the boys had been looking forward to it all holiday! The tide was in, so there was no space to build sandcastles, but it was great for jumping in the waves. When we visited Saltburn last year we had fish and chips at The Seaview Restaurant, however, it had been featured on a BBC food programme, so is now super popular, and we could not get a table. Last year, we spotted Tomahawk Steakhouse across the road, so we booked into there instead. It was a good move – the food was great, and we had a nice sea view. Whilst we were waiting for our food we saw a fire on the headland in the distance, which started to get bigger. By the time we had finished our main courses, the fire brigade had arrived to put it out.

As we finished our dinner, it became clear that there was going to be an epic sunset, so I rushed back to the flat to grab my camera and tripod, for a photography session on the beach. Saltburn is one of the few places on the east coast of England where the sun sets into the sea, as the town faces north, so I was hoping for some epic photos. I was probably a few minutes too late for the best, golden, light, but stuck around on the beach for another hour or so and was rewarded with a lovely pink and purple sunset. I mainly shot around the pier, and my favourite composition was directly under it, with a neutral density filter on my lens to give a longer shutter time to blur the water. But when I got the pictures onto my laptop, I preferred the one at the top of this post, looking back at the pier and the pink sky, again with a neutral density filter to blur the water. As I wanted to move quickly, I had only taken my camera, with standard zoom, tripod and filters with me – which I regretted as I climbed the steps up from the beach to be met by a crowd lined up to photograph the “Super Blue Moon” over the headland, which had earlier been on fire. Nonetheless, it was probably my best photography session of the year.

The plan for the last full day of our holiday had been to have a beach day – but the weather did not agree with our plan! As it was a bit grey and windy, we had a quiet morning at the flat before trying to get a table for lunch at the Sea View Restaurant, again our plans were scuppered, this time by an extremely long queue. So we went for a round of mini-golf, to see if the queue went down at all. It did not. After our round of mini-golf, which I won, the queue was even bigger! Instead, we got a takeaway, and sat on the beach to eat it – the fish and chips were good, even if the boys did not really appreciate them. We also managed to avoid any seagull attacks. In the afternoon we returned to the beach. It was cold, but the boys still managed to do some digging, whilst Jen and I wrapped ourselves up against the wind. The boys and I also had a windy game of frisbee. As the beach at Saltburn is lower than the town, there are a lot of steps to climb back up. Fortunately, there is also a Victorian cliff railway to take you back to the town – we made use of this to get back to our Airbnb. Walking back, we noticed that the corner shop at the top of our road had a great butcher/deli/cake counter, so we picked up some things for a light dinner and some cakes for afternoon tea. Although it was not the beach day that we had hoped for, it was nice to have a relaxing day. In the evening Owen and I went out for a walk with our cameras. The light was not as good as the previous evening, but it was still nice to get out together.

Before setting off for home, we had another little walk around Saltburn stopping to pick up breakfast at another little bakery, where their “meal deal” meant it was cheaper for us to also pick up some cakes! We ate our breakfast (but not the cakes) on a bench overlooking the sea, which was a really nice way to end our time in Saltburn. We broke up our journey home with another English Heritage stop – at Brodsworth Hall and Gardens, chosen because it had a playground and cafe, and only added a few minutes to our route. It was nice to explore the gardens and stretch our legs, but I think we were all quite keen to get back home by this point, so did not stay for too long.

I feel like this whole road trip has been one of our best family holidays. Heading north for our main summer holiday was always going to be a risk, but other than our planned beach day, the weather was mostly pretty good, in particular the days we were in Scotland. The multiple-stop road trip is my favourite type of holiday, but not always easy with small children, now that the boys are older it worked really well. We managed to keep all the drives below two hours so the boy did not get too bored. Despite it being our longest trip with the boys, and also having bikes and kit for all of us, we managed to pack sensibly and did not have to perform much “van Jenga”. We packed smaller cases for both the Lake District and Saltburn, only emptying the van fully when we were in Peebles. We wanted to try a UK road trip as a trial run for a future European road trip, and other than the longer distances involved I think that it will work well. As we were driving home, one of my main takeaways from the holidays was how much I enjoyed visiting all the small bakeries. The thing is, that we actually have a really nice bakery near our house, so we are going to make an effort to go there more and keep the holiday feelings going.

Summer 2023 Road Trip: Part 2 – The Tweed Valley

This is the second post in the series about our summer 2023 road trip, where we stayed in the Lake District, the Tweed Valley (this post) and Saltburn (coming soon).

Our second base for this trip was the Scottish Borders, more specifically the town of Peebles in the Tweed Valley. Mountain bikers will need no introduction, but for everyone else, the Tweed Valley is a mountain biking hot spot, with some of the best trails and infrastructure in the world. It was the venue for the Mountain Bike XC competitions at the World Cycling Championships a few weeks before our visit, and is home to many professional mountain bike racers.

As we drove up the A7, a route I remember from visiting my granny when I was younger, we stopped for a quick photo at the border. Arriving in Peebles, we found our holiday cottage tucked away down a quiet pedestrian street near the town centre. It was nice to have secure bike storage there, rather than worrying about the bikes being left in the back of the van. Once settled in, we went out for a walk to explore the town, starting with a walk around Hay Lodge Park, then across the Tweed on a footbridge and back into town on the main road bridge. We walked up the high street, picking up some food for breakfast, and finally calling in at Jim Jack’s Fish and Chip shop to get our dinner. Jen and I had haggis supper (deep fried battered haggis and chips) – one of my favourite meals – and the boy had sausages. It was good to be back in Scotland!

The plan for our first full day in Peebles had been to go for a family bike ride, either at Glentress trail centre or along the cycle path between Innerleithen and Peebles. However, the boys did not want to go out, they just wanted to stay in and watch TV. So rather than forcing them out of the house, I went for a solo ride at the Golfie. These semi-official trails in Caberston Forest, above Innerleithen, are known as “the Golfie” because the access point is next to the golf course. The trails have been cut into the steep hillside and are known as some of the best in the world, having played host to Enduro World Series rounds over the last few years. As the trails are unofficial there are no signposts, but thanks to Trailforks, I was able to find the trails. I decided to start with the lower section of the Wardell Way, as there was not a big climb to the start, and was one of the easier graded trails. After what felt like a long slog up the fire road I got to the entrance to the trail – it looked steep, rocky and loose and I could not see where the trail went. Quite an intimidating trail to drop into! The ride down was good, at the limit of my comfort level, but it is good to push yourself sometimes! The trail mostly cut across the slope, with the occasion tight hairpin bend and I was buzzing when I popped back out on to the fireroad. Having survived the first trail, I decided to climb even further back up the fire road to ride “Flat White”, possibly the most well-known trail at the Golfie. It was a long climb, but not too steep, and there were plenty of other riders out, despite it being a working day in Scotland. I did not need to check the map to know that I had arrived at “Flat White” – I recognised the entrance from many Instagram posts! After the tame start, in the photo above, “Flat White” got serious – it is a series of steep corners down the hill, peppered with the occasional drop. As I was riding down I noticed lots of toadstools by the side of the trail, which always makes me think of getting a speed boost, like on Mario Kart – however, given the steepness, I did not need a speed boost! Usually, I would have stopped to take a photo, but I felt like it was safer to keep riding, starting again on the trail would have been tricky. It was by far the most technical trail I have ridden, and I really enjoyed it! The Golfie more than lives up to the hype, and I am glad that I was able to ride there, even if it was just a short taster.

After lunch at the cottage, we had another walk around Peebles, stopping for an ice cream at Caldwell’s on the high street. Then in the evening, we went to Franco’s Italian Restaurant, after a recommendation from a friend. We all loved Franco’s – the food and service were great. I was particularly impressed with Henry, who ordered spaghetti bolognese and ate it himself, without making a big mess. Despite his earlier ice cream, Owen insisted on ordering a large sundae for dessert, then struggled to eat it – Jen and I had to help, and I can confirm that the ice cream was good too. Once the boys were in bed, Jen and I watched the Royal Edinburgh Military Tattoo on television – because we would be going to Edinburgh the next day.

The boys knew that we would be going to Edinburgh, but what they did not know was that we would be meeting up with my parents, who were also having a few days in Scotland, nor that my cousin Valerie would be joining us from Paris, and that my Auntie Isabel would also be getting the train down from Aberdeen to join us. Part of the plan was to drive to Tweedbank, near Galashiels, to meet my parents and get the train along the new (in 2015) Borders Railway. It meant driving in the opposite direction to Edinburgh, but it is a scenic railway journey and goes through the village where my dad grew up. Even after arriving at Tweedbank station, and parking next to a white Porsche Macan S “just like Grandpa’s” the boys still had not figured out the surprise. We had kept the secret for months, and the plan worked perfectly – the boys had no clue until they actually saw my parents and cousin at the station. It was a nice train ride through the Borders to Edinburgh, giving us all the time to catch up, Henry really took a shine to Valerie, who he had not seen since he was a baby. Then after the train pulled into Waverley Station, we met my auntie, which was another surprise for Owen. Henry had only met Isabel when he was a little baby, so did not remember her.

Even though we were too late to book tickets, we walked up the Royal Mile to Edinburgh Castle just to have a look. It was busy, both with tourists and workers dismantling the seating from the Tattoo the previous evening. Unfortunately, this meant that we could not get to the walls to admire the view over the city, so instead, we walked back down the hill to Princes Street Gardens, stopping for a photo at the scene of the last trick on Danny MacAskill’s Inspired Bicycles film – one of Owen’s favourites. It was a nice day, so we sat at the cafe in the park for a bit, enjoying ice creams and coming up with a new plan. We decided to visit the planetarium at Dynamic Earth, at the bottom of the Royal Mile. After a lot of walking, it was nice to sit down and watch a couple of short films – one about satellites and another about deep sea creatures. From the planetarium, we walked back to the New Town for a meal before getting the train back to Tweedbank.

We had planned to ride at Glentress on our last full day in Peebles, but it was becoming apparent that Owen was actually not feeling very well, rather than just being reluctant to ride. After a full Scottish breakfast at a hotel in town and a quick look around the shops he had perked up a bit, so we drove to Glentress. The revised plan was that Jen and the boys would go for a chilled ride while I did a short loop on the blue/red trails. By the time I got to the top of the first descent, “Berm Baby Berm,” I got a message from Jen to say that Owen was feeling better, found the trails too tame and wanted to ride with me. It was a fun ride back down to the cafe, on the blue-graded trail. There were plenty of optional, bigger, features to make the trail more technical – almost as if it had been specifically designed for the differences in abilities when parents ride with their kids. I caught up with Jen and the boys at the cafe and adjoining bike shop – which the boys had already scoped out. Owen has got a bit too used to getting a treat from the bike shop whenever we ride anywhere with one and this time it was a Fox hoodie. I also treated myself to a Glentress T-shirt, but Henry was left disappointed, as they did not really have anything small enough for him. Owen and I decided that we would ride as far up the hill as he could, then ride back down. He liked seeing the remnants of the bigger features from the XC World Championships course, which we had watched on television a few weeks previously. Owen seemed to be struggling on the climb – I think the adrenaline from the earlier ride had worn off, so we rode back down at the first opportunity. It was a fun ride back down though, further than he had ridden with Jen and Henry earlier, and I was happy with the photo I got of Owen on the boardwalk section. It was only when I was processing the photo that I realised how ill he looked. As we got back to the van we spent some time watching the trail builders working with their digger, which Owen loved. For years Owen said he wants to be a “digger driver” when he grows up and I think driving a digger and building trails would be the dream!

Back in Peebles, we had a post-ride treat lined up – a visit to Cocoa Black, a chocolate cafe! We had cakes and one of the best hot chocolates I have ever had. We also bought a chocolate haggis to bring home with us. Owen still was not feeling great, so Henry and I took a walk to the park, and back along the river – spotting a heron on the way. We had dinner at the house – Jen and I had lasagne pies from the butchers in town, and they were great!

After packing up the van, we had one last thing to do before leaving Peebles – visit The Fat Batard Bakery – I have been following their Instagram account for a while and their cakes looked amazing, but our final morning was the only chance for us to visit, so we bought some cakes for the road, and pointed the van south to start our return journey.

I really enjoyed visiting the Tweed Vallet, and feel like it is somewhere I will return to, especially as Owen missed so much of the riding. There is a lot of trail work happening at Glentress, so it should be even better, but even without the mountain bike facilities it just felt like a really nice place to visit, and a lot easier to get to than the Highlands.

Henry’s First Day at School

Henry, who still feels like the baby of the family, is starting school today! It is not as big a change as it was for Owen starting in reception, as Henry went to the preschool at school last year and went to holiday club in the classroom he will be in this year. It was nice walking to school and seeing all of Henry’s classmates from nursery, most of whom he had not seen all summer, it was also reassuring that he would have some familiar faces in his class. Henry only went to school for a few hours this afternoon, and I was surprised that parents were bringing the children into the classroom and getting them settled – Owen’s first day was in 2020, during Covid, so we just left him at the door. Having us there seemed to make it worse for Henry, but he soon settled down and was telling the teacher about our recent bike ride at Sherwood Pines, despite us not having ridden at Sherwood Pines for months. Hopefully, this was nerves, rather than mistrust of the teacher! I was quite proud that before we left him, he had already written his name in the writing area.

As with Owen, in addition to the mandatory photo by the front door, I asked Henry some questions, to record how he has changed over the years:

  • Height: 107cm
  • Shoe size: 11K
  • Bike: Frog 48
  • Favourite colour: Blue
  • Favourite food: Spaghetti bolognese
  • Favourite book: The Adventures of Paddington: Hide-and-Seek
  • Favourite thing to watch on TV: Alice’s Wonderland Bakery (an Alice in Wonderland spin-off on Disney+)
  • Best thing we did over the summer holiday: Going to Saltburn-by-the-Sea
  • What do you want to be when you grow up? He does not want a job, he wants to be a princess.

Waterfall

This image did not really fit into my Summer 2023 Road Trip: Part 1 – The Lake District post, but it was taken out the back of the camping pod that we were staying in at Troutbeck Camping Pods. In fact we could hear the waterfall all night!

This was a two-second exposure, with a neutral density filter and a circular polarising filter to extend the shutter time and control reflections, taken on my Fuji X-T2 with the 18-55mm “kit” lens.